As soon as Isabel walked through the door yesterday I said to Brian that I think a seizure is coming soon. The last few days she has been miserable. She also has been waking up shaking very badly, which has recently subsided a bit. Last night she cried non-stop from the minute she got home until the seizure started, why is that? I wish she could tell me. It really did come out of the blue. I turned away for just a minute and when I looked back she was already blue. I layed her down and her eyes rolled back in her head and she went unconcious. It lasted well over a minute. She went to sleep in my arms for awhile, it is so hard looking at her pale little body. Thankfully when she came to, she was back to herself again, just a little slower...happy as can be. The transformation was amazing. We kept her up for awhile to ensure that she didn't have another seizure.
I put a call into Dr. F today and am currently waiting to hear back. I know that he is going to want to increase or add another med. I really do not want to do that. She is honestly overmedicated as it is. I want to know the route of this. We still haven't figured out where these seizures are coming from yet! I know that she has epilepsy and seizures are a normal thing but no parent should have to watch their child go through this...it's just not fair.