Wednesday, January 4, 2012
New Year/New Updates
We also went to see hematology due to her lack of clotting when she got her blood drawn and her easy bruising. After a long talk with the doctor and a few tubes or blood we found out that she has low Factor VI or Hemophilia C. It's definitely not a huge concern but something that we will need to follow up with in February when we see hemo again.
Isabel has also been waking up screaming occasionally and holding her head. The first few times I gave her some Motrin and brushed it off but after the fourth time I called Dr. F. He said that migraines go hand and hand with epilepsy so he put her a preventative migraine medicine. Since we started it, she has become a different child. No more waking at night, so much happier during the day and she is eating much better too! I feel so bad for brushing off her pain for so long.
Lastly, poor Izzy has been having diarrhea for over a month so we took her to the pediatrician. They gave us lots of cups to take home to fill with "samples" and took some blood to run some tests. A week and a half later when I received a call from the actual pediatrician I knew that the news wasn't good. She tested positive for celiac disease. I guess this also can go hand in hand with epilepsy. I was told not to change her diet until we see the GI doctor at the end of January. I will make them test her yet again because this is a major lifestyle change for my baby.
I just wish that she could catch a break. Through it all she is such a trooper...she always has a smile on her face. She is teaching me an invaluable lesson and I will never forget it, she truely is my hero.